Save Sight Institute and Keratoconus Australia have launched a comprehensive resource that provides patients with essential information on corneal collagen crosslinking (CXL), the only procedure available to treat progressive keratoconus.
A media release said the comprehensive brochure was now available for download on the Keratoconus Australia website.
A one-page flyer with a summary and a QR code to the full brochure is available at https://www.keratoconus.org.au/wp-content/uploads/2024/11/KA-crosslinking-Flyer-2024-FN.pdf
The release said the new brochure presented a clear, evidence-based overview of CXL, explaining the procedure, the different types of crosslinking, their potential benefits and risks, post-operation after-care, CXL and young children and the consequences of not undergoing the treatment.
Professor Stephanie L. Watson OAM, a world-renowned corneal specialist, emphasised the importance of the brochure for patient education.
“This brochure provides evidence-based information on corneal crosslinking, helping patients understand if the procedure will work for them, the risks involved, and the potential consequences of leaving progressive keratoconus untreated,” she said.
You can watch the official launch video by Prof Watson here: New Patient Guide for Corneal Crosslinking
The brochure has been informed by the latest findings from the Save Sight Keratoconus Registry, a valuable resource for tracking real-world outcomes of keratoconus treatments.
Dr Himal Kandel, Kornhauser Research Fellow at the Save Sight Institute, said: “The latest real-world research from the Save Sight Keratoconus Registry has guided the development of this brochure, ensuring that patients have access to the most up-to-date data on the short- and long-term safety and efficacy of CXL.”
Keratoconus Australia president Mr Larry Kornhauser OAM, who also lives with keratoconus, shared his personal connection to the brochure.
“As someone with first-hand experience of keratoconus, I know how important it is to have comprehensive and reliable information,” he said.
“This brochure was written in collaboration with patients to ensure it addresses the major concerns of people with keratoconus who are considering the CXL procedure.”
This initiative is part of ongoing efforts to raise awareness about keratoconus and CXL and to ensure patients have access to accurate, easily accessible information to make informed decisions about their eye health.
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